PENGALAMAN PERAWAT PALIATIF ANAK DALAM MEMBERIKAN PERAWATAN END OF LIFE DI RUMAH
Abstract
Background: providing pediatric palliative care on en of life
phase has special uniqueness compared to palliative care in
general. This study aims to explore the experience of pediatric
palliative care in providing end of life care at home.
Method: this study used qualitative method with phenomenology
approach. The data were taken by in-depth and analyzed by
Collaizi Method (1978). There were 5 participants pediatric
palliative nurses working in Yayasan Rumah Rachel providing
home care.
Results: This study found 4 main themes, “building trust”,
“connecting patient and family wills”, “realizing the hopes”, and
“management of self-emotion”.
Conclusion: The nurses in providing pediatric palliative care
prioritize the wills and hopes of patient and family. The nurses
are required to be able to control their self in providing palliative
care.
Keywords: Pediatric Palliative Nurses, Home Care, End of life,
Qualitative study.