NURSE’S ROLES IN PATIENTS-FAMILY DECISION MAKING FOR PALLIATIVE PATIENTS IN INDONESIA AND MALAYSIA
View/ Open
Date
2020-01-01Author
Huriah, Titih
Sutantri, Sutantri
Sarkasi, Rosnani
Abdullah, Madihah
Metadata
Show full item recordAbstract
The worldwide prevalence of palliative patients is increasing with the increase of ageing population and incidence of communicable and non- communicable diseases. As in 2008, 20,245,792 out of 54,591,143 deaths require palliative care which is about 37%. It increases with 70.3% of deaths only caused by non-communicable diseases. For the patients with age above 70 years old, the prevalence living with cardiovascular disease increase to 53.7% while diagnosed with neoplasm is 86.3%. Both Malaysia and Indonesia also has an increase in the number of patients receive palliative care. The limited of palliative care services especially for cancer patient can affect the late in palliative care management such as late in decision making. Decision making is one of the crucial process that every patients with life threatening health problems need to overcome. Usually patients, family and physician will involve in the decision making process which also known as shared decision making. However, during the process, there will be difference perspectives and preferences. Therefore, nurses can be the third party between the patients and physician, the family and physician and the patient and the family in helping them for the decision making.
The research objective is to explore the nursing roles in preparing the palliative patients and family in decision making of palliative care plan in Indonesia and Malaysia. The study will be conducted in qualitative method with the phenomenology approach. Purposive sampling will be used for the participants’ selection because it helps in selecting the participants who have a lot experience in the study area to be interviewed. The the sample size of this study will be 12 participants from two different study settings. Each study setting will recruit three palliative nurse and three physician. The study will be conducted within March until May 2020 at two places (PKU Muhammadiyah Yogyakarta Hospital (PKU) Indonesia and Tunku Fauziah Hospital (HTF) Malaysia. The data from the in depth interview will be transcribed and verbatim then it will be analyzed. This study will use thematic analysis data by using the interpretative phenomenology analysis (IPA). Approvals for this study will be sought from Ethical Committee of Universitas Muhammadiyyah Yogyakarta Indonesia and National Medical Research Register (NMRR). Then, the ethical clearance also should be gained from the ethical committee of HTF and PKU. Then, verbal informed consent will be obtained from the participants before the interview’s date appointed while on the date of the interview, the signed informed consent will be attained.